Wednesday, March 27, 2013

Tuesday, March 26, 2013 was Purple for Epilepsy Awareness Day. At nine years old Cassidy Megan founded the day five years ago. "I wanted to Have one day where everyone in the world could show support for people with epilepsy and teach people about epilepsy." Ten year old Cassidy shook hands with the Queen and last year Cassidy was awarded the Queen Elizabeth II Diamond Jubilee medal.

I started off my day by walking the dogs, exercise, sunshine and dusty air.

With a basket of goodies I received from The Center For Epilepsy and Seizure Control in BC, I strolled down to the Tea at the "Country Coffee Shop" with possible support group participants. I walked into the Coffee shop and it was full, a table of four was set aside for us, lucky, by the time the last couple arrived another table became available for the six of us. We were noticeable allwearing purple, except for Kelly who was wearing red, in fact I noticed a lot of red. Anyone walking in wearing purple got a pencil, magnet, bracelet, bookmark, of their choosing. Three of us have epilepsy, one of us feels isolated by her epilepsy and was excited about having a support group in Enderby. After the tea I walked about the town and handed out my goodies, to eager takers, in doing so I met more people with epilepsy or who have family or friends and would also be interested in a support group.

March 26TH happened to fall on a Tuesday which is Toastmasters night, I took the position as Chair for the evening with the theme "Epilepsy". I invited the new support group and three were able to come to the meeting. Everyone had some tone of purple on, I was sure John in his fedora with squares of purple paper in his hat band would scare off the guests with his hand shake of a purple, balloon stuffed glove. For the break we had cookies and purple corn chips with purple, beet dip. Heather thought a purple dip was a good choice, if we spill, it wouldn't be as noticeable on our purple clothing, as John dropped a lump of dip from his chip, onto Heather's skirt.

I reached back into my past as I researched famous people with Epilepsy, Neil Young was one of my favorite singer song writers. I quenched my throat with water, and took a deep breath, out of my throat came "Helpless", helpless, helpless, helpless, helpless......the song felt suitable for the day, the feeling you may have at loosing your drivers license, waking in the street, not knowing where you are, with strangers yelling at you as if you are drunk, pain in all your body, confusion, doctors voices spinning in your head, pharmaceuticals, no climbing of ladders, no taking of bathes..........Helpless.

I'll get over it, who can be sad when they are wearing purple flowery Tom canvas shoes, every one wanted my shoes, at a size 3 girls they only fit me.

Love you all!

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